Showing posts from April, 2017

Seeing the Full Story

On a recent drive home from out of state, I happened to hit a stretch of road construction. The interstate was closed down to one lane, with two lanes as well as an entry ramp merging traffic into the single lane. As my car slowly moved through the clutter, I came to the road crew... Milling around on the side of the road in between the orange barrels. One guy in an orange hat and vest was sitting on a guard rail, hunched over to see his phone in the sunlight. Clearly, they weren't doing what I thought they should be in repairing the road. I bitched out load. WHAT. THE. HELL. YOU ARE ALL STANDING AROUND OR SITTING THERE PLAYING ON YOUR PHONE, WHEN PEOPLE ON THE ROAD MUST DEAL WITH THESE HAPHAZARD, NON-SENSICAL LANE CLOSURES!?!? For a moment, I thought about pulling my car off to the side and getting out to confront the apparent non-working construction crew. Then, I though about what I wasn't seeing. Maybe there was more to this story than I knew. By chanc

Thawing Out a Frozen Shoulder, with Diabetes

Scott Johnson’s left shoulder was bothering him. Really bothering him. "I couldn’t remember a specific incident, but was sure it was just a stubborn basketball injury," said Johnson, a longtime type 1 for more than three decades who blogs at Scott's Diabetes and has worked within the diabetes space for many years . But after months of physical therapy with no progress, and even what he describes as "negative progress," Johnson was diagnosed with adhesive capsulitis , better known by most people as frozen shoulder. This is one of those lesser-known diabetes complications, one that doesn't get discussed much in comparison to vision loss, nerve damage, and a host of other very scary ones. But it's a complication that can be painful and life-altering, and isn't always easy to recognize when we might just equate it to "the wonders of getting older." Overall, it's not really on the radar unless you're personally experie

George Huntley: Songwriter, Half-Marathoner, Box-Making Expert, Diabetes Advocate

Meet George Huntley, a longtime type 1 who you can pretty much think of as a "professional volunteer" in diabetes advocacy. OK, we made that title up, but it's apropos given what this Indianapolis D-peep has been lending his free time and passion to a huge array of advocacy pursuits since the early years following his T1D diagnosis in the mid-1980s. He moved up through the ranks to top leadership positions with the American Diabetes Association, and went on to help create the Diabetes Leadership Council in 2013. That's all just the diabetes side of George, who is originally from Baltimore but has been in Indiana for two decades and is quite the interesting guy. His professional resume makes a good read -- listing an eclectic array of roles from IT consulting and mortgage appraisals to life sciences to working at an 80s and 90s startup making computer game simulators, being part of a heavy machinery company's business which included overseeing a box-m

Insulin Availability for Those Who Need It Most (Remembering Shane Patrick Boyle)

This is a story we wish didn't need to be told. By now, no one should be surprised by the high cost of insulin and how broken the drug-pricing system is in this country. In late 2016, we shared a story about the human cost of unaffordable insulin. Fortunately, the woman highlighted in that story was able to find help, so there was a positive ending. Sadly, that's not always the case. Some of you may be aware of the story of Shane Patrick Boyle , who died in mid-March 2017 as a result of not being able to afford or obtain insulin. He isn't the first, and won't be the last, and the facts that it's 2017 and we live in one of the wealthiest countries in the world makes this even more of an outrage. It's unacceptable, and something has to change! Remembering Shane Patrick Boyle We never met Shane, nor did we connect with him online in any way. But he was one of us . A member of our Diabetes Community, someone who had lived with ty